In November 2024 we sadly lost our daughter, Esme James at 35 weeks pregnant. We received the devastating news that she was diagnosed with TSC and had over 30 tumours on her brain, due to a genetic mutation.

Currently TSC has no cure, children and adults with TSC can only manage their symptoms such as Epilepsy. There is a wide spectrum of severity and every case is different. Unfortunately our little girl was too poorly to make it.

Myself and Hayley would like to raise as much money as possible to support families living with TSC and to support any families that are going through a simialr situation to ours. Over the next year I will be organising events such as the three peaks challenge, football events and other fundraising activities. Further details of the TSA can be found below.

The Tuberous Sclerosis Association (TSA) is the only UK charity dedicated to supporting people affected by Tuberous Sclerosis Complex (TSC). TSC is a genetic condition that can lead to growths in various organs of the body, but those most commonly affected are the brain, eyes, heart, kidney, skin and lungs. When they cause problems it is mainly because of their size and where they are in the body.

By supporting me with a vital donation you can be a part of the TSA’s life-changing work....

Forever in our hearts Esme James xx