Our beautiful daughter, Luella, was diagnosed, at only 11wks of age, with a very rare and catastrophic form of epilepsy called Infantile Spasms/West Syndrome.

At almost 5 years old, she now has Lennox Gastaut Syndrome enduring daily seizures and global developmental delay where she cannot walk, cannot talk & cannot independently feed herself. It has been nothing short of a horrific journey so far, as we have been unable to obtain seizure control or freedom. And there is no cure.

Approximately 260,000 Australian's live with Epilepsy.

So as a proud ambassador and Board Director of Epilepsy Action Australia, I am taking my place at the starting line of one of the six world major marathon events - The BMW BERLIN MARATHON 50th Anniversary Festival, on Sunday 29th September 2024, in Germany.

I am running a challenging 42.2 kilometre run through the streets of Berlin to raise more awareness for children living with Epilepsy.

I'm running because my daughter cannot. So I run in her honour.

I'm running because it is an absolute privilege to be able to move & push my body. It won't ever come close to what Lulu endures, but this is my way of enduring something hard too.

I'm running for all the other children and their families, who also live with epilepsy. Especially those like Lulu, where it is a life limiting condition.

And I'm running to continue raising money for EAA, so that they can maintain the incredible work they have been doing for 73years now, by helping to support people like Lulu, and families like mine.

So I ask you to please, please, dig deep and donate generously, to help me achieve this huge goal of $100,000 for EAA. Community support is so needed.