Story
Hi everyone! I'm doing a 10k inflatable run with my sister Georgia-Skye. We are polar opposite in sportiness, with me being the one that enjoys running. I am fundraising for EOS Network as this charity is very close to my heart and has given invaluable support, especially Amanda, to Georgia-Skye since she was diagnosed with Eosinophilic Oesophagitis at 21yrs, and has needed their support more so this year. It can be difficult watching the impact EOE has not only on her physical health but also the social aspect of life.
The EOS Network is the UK's only charity for Eosinophilic Diseases. Eosinophilic Diseases can often be misdiagnosed due to mimicking more common diseases. Eosinophilic gastrointestinal diseases, (EGIDs) are a group of eosinophilic associated conditions such as oesophagitis, gastritis, enteritis, and colitis affecting gastro intestines. This happens when Eosinophils (a type of white blood cell) become abnormally elevated in their digestive system, tissues, organs, and/or bloodstream, without a known cause.
Eosinophilic Oesophagitis
Eosinophilic Oesophagitis (EoE) was first recognised as a distinct disease in the early-mid 1990's. EoE can be diagnosed at any age and occurs when too many eosinophils are found within the oesophagus causing inflammation which can lead to difficulty swallowing. Symptoms can vary in age but can present as; regurgitation/vomiting, difficulty swallowing, sensation of food sticking, chest pain and food impaction (food bolus obstructing the oesophagus). If left untreated, long term damage can be caused by fibrosis of the oesophagus leading to narrowing of the oesophagus.
Current treatments for EoE are limited and include, Proton Pump Inhibitors (PPI's e.g Omeprazole, Lansoprazole), elimination diets (2, 4 or 6 food), elemental diets, topical steroid, and most recently, but not approved in the UK for prescribing for EoE, biologic injections.
EOS Network
Our vision is to create a world where people with Eosinophilic-Associated diseases can live without pain.
Every contribution counts towards achieving our mission of providing a prompt, accurate diagnosis, the right treatment for them, and support to live with their condition.
Your support, no matter how small, can make a significant difference in the lives of people affected by Eosinophilic-Associated diseases.
Useful links
https://www.eosnetwork.org/what-we-do
https://www.eosnetwork.org/eoe-eosinophilic-oesophagitis
https://www.eosnetwork.org/eosinophilic-oesophagitis-leaflet