Story
I know Benny from Word 4 at RVI Hospital where my son was treated for Leukemia. I am sad to hear about the relapse and high risk and would love to help as much as possible to fundraise for the required therapy.
They are currently on 20% of total sum required for this super expensive therapy. Come one people lets help!
I am planning to do some live music on YouTube and see where it goes. Every little helps.
https://www.youtube.com/live/3p-YzTJPuqI?si=UQWbTikcaOebs-0z
My good friend Carl wrote this song for Benny:
https://youtube.com/shorts/-P7sAwsDKvU?si=Dct-MCmp2bHyJcps
https://on.soundcloud.com/eFTkjQEcNHfYpUGivR
Benny is a happy and caring four-year-old who loves dinosaurs, Ninja Turtles, pizza, and dreams of playing for Newcastle United when grows up. In February 2023, at just two years old, he was diagnosed with stage 4 high-risk neuroblastoma. After completing treatment in March 2025, he began DFMO, a relapse-prevention drug. Sadly, scans in September showed that Benny’s cancer had returned. His family is now fundraising in the hope that they can travel to Rome for CAR T-cell therapy.
