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Maria's fundraiser for Tommy’s bloom syndrome UK

Maria Calderone is raising money for Tommy’s bloom syndrome UK
In memory of Anna Calderone Kovacs

Chester Half Marathon 2026 · 17 May 2026 ·

Supporting UK families affected by Bloom Syndrome to access the Rare Disease Clinic at Guy’s and St Thomas NHS foundation trust. We raise awareness, ease financial burdens, and ensure no family faces this rare condition alone.

Story

This year marks ten years since we lost my sister, Anna, to a rare condition called Bloom Syndrome.

Anyone who knew Anna will remember what a force she was, small in stature but never described quiet or shy!

Her passing left an enormous gap in our family that is still deeply felt, especially by her three boys.

To honour her, my niece Brooke and I will be running the Chester Half Marathon on 17th May, hoping to raise awareness and support for other families going through similar experiences.

We’ve chosen a charity close to our hearts that provides both emotional and financial support to those affected, helping families access specialist care when they need it most.

We’re really proud to share their JustGiving page in support of Tommy’a Bloom Syndrome and thank you for your generosity xx

Donation summary

Total
£1,400.00
Online
£1,400.00
Offline
£0.00

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