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Hi everyone so after completing my first sky dive this year I am excited to be doing another one this year at 10,000ft! In Perranporth. But this is a really important one as I will be doing this skydive to raise money For Lola my niece and to directly support the valuable work of the AT society.
The AT Society supports people like Lola who are living with the condition Ataxia-Telangiectasia. This society funds research to find a cure and support services for families and specialist AT clinics, and helps raise awareness.
Ataxia-Telangiectasia comes with many symptoms.
Neurological symptoms include:
- Unsteady walking and lack of balance
- Lack of coordination of movement
- Slurred speech
- Difficulty swallowing
- Unintentional movement, such as tremor or jerky movement
- Difficulty coordinating eye movement
Other symptoms may include:
- Frequent respiratory infections
- Red “spider” veins around the eyes, ears, or cheeks (telangiectasias)
- Increased sensitivity to ionizing radiation (such as X-rays or gamma rays)
- Diabetes
- Premature graying of the hair
- Fatigue
- Delayed physical and sexual development
There is no cure for AT and currently no way to slow the progression. Treatment is symptomatic and supportive, such as physical therapy to help maintain flexibility and speech therapy to teach children how to control breathing. Additionally, high-dose vitamins, antioxidants, and gamma-globulin injections may be useful.
The aim of this Charity Skydive is to raise money to hopefully one day find a cure to help other children to prevent this illness from effecting other peoples lives.
Any donations are greatly appreciated I’m proud to be doing this event for Lola and the AT society🤙🏻🪂❤️
