Story
We're running the london marathon (and various other races before then) to raise money for PSPA
Who are PSPA?
The PSP Association is a national charity providing support and information to people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration(CBD), while funding research into treatments and ultimately a cure. They aim to improve the lives of everyone affected by PSP and CBD and rely entirely on voluntary donations.
Why PSPA
in 2018, after a lifetime as best friends Mark and Mike became family after Mark married Shannon, the sister of Mike's wife Deanne. Sadly, just 2 years later, Shannon and Deanne's dad Steve was diagnosed with PSP. Over the last 6 years, we have seen Steve slowly robbed of his ability to walk, talk and eat as the devastating affects of PSP have progressed. The affects on him, his daughters and his wife Elaine, who has become his full time carer, have been heartbreaking to watch. Any breakthrough or cure that comes as part of PSPA's research will come too late for Steve but it can help other families who have been affected by this horrific and little known disease.
