The Haemophilia Northern Ireland (HNI) charity provide information, education and support for those affected by haemophilia and other bleeding disorders in Northern Ireland.

On the 4th May 2025, 4 teams of amazing supporters have agreed to run part of the Belfast marathon relay, some experienced runners, and others taking up the challenge to support a wonderful charity.

Team 1: Christen O'Neil (doing 2 parts), Rory Hardy, Paula Smithson, Ronan Smithson.

Team 2: Louise Agnew, Stuart Black, Crystal Speers, Emma Mawhinney, Rebecca Bossom.

Team 3: Kirsty Hutchison, David Spence, Jo Brown, Sam Graham, Mary-Anne Jess

Team 4: Paula Quinn, Niall Eames, Grace Kennedy, Matt Graham, Anthony Trimble.

Thank you for helping us raise awareness of Haemophilia and bleeding disorders. For all your encouragement and generous donations to support the HNI charity.

Team Jess' story.

Our 3 year old son Daniel has severe haemophilia A, a rare bleeding disorder in which the blood doesn't clot in the typical way because it does not have enough blood clotting proteins (clotting factors). If you have haemophilia you might bleed for a longer time after an injury than you would if your blood clotted properly. Haemophilia makes daily life more anxious for the suffer and for the family, with the constant worry that a small inconspicuous injury could result in a significant bleed. Thanks to a weekly injection of a prophylactic medication called Hemlibra, Daniel's clotting levels are raised to up to 15% of normal, without it he has less than 1% normal.

We are blessed to have the medical support and support of family and friends and that of the HNI charity, who have greatly supported us since Daniel's diagnosis when he was 9 months old.

Thank you.

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