Thank you for visiting my JustGiving page. We are very excited to share that we will be participating in the Venice Marathon on October 26, 2025, to support a cause that is close to my heart: The Chelsea Burley Trust.

We have paid for the race and all accommodation & travel ourselves. 100% of all the donations will go directly to the charity.

Why we Are Running Venice Marathon.

The Charity will donate everything to Alder Heys research department and Children’s oncology department.

Why? If you didn’t know why we set the charity up in our daughter’s name. This is……

Chelsea’s Story

On the 6th November 2012 our daughter Chelsea was first diagnosed with a brain Tumour.

13 years ago Chelsea had been suffering with really bad headaches for a number of weeks, after many trips to the doctors and hospital she ended up having a scan.

Although you never expect what we was told, always follow your gut. Nobody knows your child Better than yourself.

When we was getting told, Chelsea went away with the nurses. When she came in she had made her beautiful butterfly 🦋 since then it has been a massive part with her journey.

After Many years on and off chemotherapy with lots of ups and downs she also had to deal with a horrible stroke. Watching her learn to eat talk and walk again is one of the most remarkable things we have witnessed. Then just a couple of months later going through her proton therapy while continuing with her physio.

She has lots of new challenges ahead with her disability now. With have the weakness down her left side.

Four and a half years after this everyone was convinced the tumour was dead, but then suddenly after a routine scan it started showing signs it was active again.

In October 2024 Chelsea went for her resection on her brain tumour or as much as possibly (safely). Chelsea was in the operation for just under 9 hours they successfully got about 80/90% of it out, In which everyone is chuffed to bits with. The tumour is now going off for lots of different tests, to see what treatment would be best for Chelsea if/when needed.

After the operation Chelsea had pretty much slept but was showing weakness down her left side again. With some improvement after a few days. Five days later Chelsea’s had been more alert and started to sit up and stand briefly. She started to take a few steps with the physio team and we were so pleased of the progress that she’s making.

Chelsea had a MRI scan the Drs came in the afternoon to confirm that unfortunately Chelsea had suffered another Stroke hence the left sided weakness. We weren’t surprised by this because we were thinking it ourselves but were absolutely gutted that it happened again. They have been pleased with the progress that she is making and we will keep taking each day as it comes.

Chelsea was allowed home to continue her progress with the community physio team. She was so happy to be back home. After a few days of being home Chelsea started to become unwell we had a review at the hospital but everything looked stable on her scan, we came home again but unfortunately Chelsea was still unwell after a few days, we went to Stoke hospital to get her checked out, she had another scan and it revealed that Chelsea had fluid on the brain so we were taken back to Alder hey late that night by ambulance. The dr was waiting for us when we arrived. We didn’t know if she was going straight for surgery or was having the operation the next day. The dr examined and decided that she will have surgery in the morning.

Chelsea had the fluid drained in the morning and as soon as she came back to the ward she felt so much better. After a few days Chelsea was allowed home again.

Since being home Chelsea has recovered really well.

We had the results from her tumour it’s still the same type but they have found 2 mutations in it so at the moment there is no treatment available for her.

Chelsea has had a scans since and her tumour remains active and are currently looking at the best treatment for her to go on.

Last June when Chelsea had a scan, she had a routine spinal scan as they do this from time to time, Chelsea had a scan which included her spine, unfortunately they have discovered that she has a tumour on it, they think it’s the same kind of tumour as her brain. We are all absolutely devastated but they will continue to monitor it and hopefully when she gets targeted treatment that will target this tumour too.

At the moment it is a waiting game.

We know Chelsea will continue to be an amazing superstar like she always is 🦋

By donating through JustGiving, you can make a direct impact. Your contribution is simple, fast, and secure. JustGiving ensures that your details are safe and will never sell them or send unwanted emails. Once you donate, your money goes directly to The Chelsea Burley Trust, making it the most efficient way to support this incredible cause.

I kindly ask for your support as I take on this challenge. Together, we can help The Chelsea Burley Trust.