Our family has been living with Aspergillosis and its effects for almost 10 years. There are different types of the condition, Malcolm has Chronic Pulmonary Aspergillosis.

As it is a relatively rare condition we have found it difficult to source accessible, age appropriate information for our children. Through The Aspergillosis Trust we would love to have some readily available resources made for ourselves and other families in our situation. It would just be one less thing for families to think about after diagnosis ; Knowledge is power.

Maureen and three of the children are going to complete the seven highest mountain summits in Northern Ireland. We will do this by taking on two summits at a time. We have 3 exact dates over 6 weeks planned but, knowing from experience, these dates may change. The challenge will be completed by May and we will keep you posted. Our first hike hopefully will be Saturday 25th Feb.

______________________________________________________________________________

The vision of Aspergillosis Trust is to achieve the best outcomes for all aspergillosis patients, until such time as a cure can be found. We have an aspiration to support research into the disease and mycology generally that can help improve health outcomes for patients. We will work towards this by:

* Raising awareness of aspergillosis amongst the general public.

* Finding ways to ensure patients get the best possible information to help them manage the illness.

* Increase the understanding of the condition amongst medical professionals.