Time for another fundraiser! And this time I've roped in a fantastic group of family, friends & colleagues to tackle the Yorkshire 3 Peaks; a 24 mile hike, taking on 3 of Yorkshire's most gruelling hills in under 12 hours! Although it’ll be quite the challenge, it’s nothing compared to the challenges that children living with Rett Syndrome face each and every day.

For those of you who aren’t familiar with Rett syndrome, it is a rare neurological condition which often strikes previously healthy little girls between their first and second birthday and leaves them with multiple disabilities and medical complexities for life. Most people with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common. Research has shown that girls with Rett do not have brain damage. They know and understand much more than their bodies allow them to show - but they are locked in, trapped by a body that cannot obey signals from their brain.

Whilst there is currently no treatment for Rett Syndrome, there is hope. In 1999 scientists identified the genetic mutation that causes Rett Syndrome. In 2007, they unexpectedly reversed the condition in mouse models of even late stage disease. Reverse Rett works to speed treatments and a cure for Rett Syndrome by funding research that will have a practical and positive impact on our children’s lives. They fund research from basic science to clinical trials and work to facilitate the translation of this work into clinical applications for people with Rett Syndrome.

The UK Rett Syndrome community is at a pivotal moment currently, with two clinical trials of gene therapies underway and they need your support to keep their work going. Help us find a cure for Harriet and all those currently living with Rett Syndrome! No matter how big or small your donation may be, it will make such a difference.

#changeispossible #hopeforharriet #untilshecan #reverserett