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Megan's fundraiser for Williams Syndrome Foundation

Megan Hopley is raising money for Williams Syndrome Foundation

Team: Steph and Megan fundraising for Williams Syndrome Foundation

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Great North Run 2025 · 7 September 2025 ·

The Williams Syndrome Foundation was formed in 1980 and is run by parents for parents of children with this rare condition which causes heart and kidney problems and learning difficulties. It desperately needs funds to finance its ambitious research and family support programmes which include national conventions and regional meetings.

Story

My nephew Thomas was born with Williams Syndrome. Myself and Steph, who is Tom's mum, are running the Great North Run to raise money for the William's Syndrome Foundation.

Thomas had open heart surgery as a new born at just 3 days old and has had lots of health complications along the way, and is currently awaiting a high risk procedure at Great Ormond Street Hospital to hopefully eleviate the stress on his kidneys due to a major narrowing in his descending aorta which is a common and serious health issue associated with the syndrome.

The William's Syndrome Foundation have provided our family with a great deal of support over the past few years and we would love to raise money to be able to give something back to such a great and deserving charity.

Donation summary

Total
£715.00
+ £178.75 Gift Aid
Online
£715.00
Offline
£0.00

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