Melanie's fundraiser for Cure EB

Melanie Gage is raising money for Cure EB
In memory of Samantha Noble

Music Event · 16 August 2025

Cure EB (formerly the Sohana Research Fund) exists to find a cure for Epidermolysis Bullosa- a very painful genetic skin blistering condition which causes internal and external wounds at the slightest friction, often leading to malignant skin cancer in young adulthood.

Story

Thanks for taking the time to visit my JustGiving page.

This year in honour of Sam’s birthday, Josie, Jane, Danny and myself are organising a music event at Sam’s favourite bar, the amazing Polonez bar on Hinckley Road ,16th August 2025 starting at 8pm.

DJ Auntie Jane will be spinning a mixture of ska , reggae and dance vinyl, supported by DJ Danny H with some popular house classics.

We will be doing this for a charity that is close to Josie's heart and Sam’s heart to find a cure for Epidermolysis bullosa (EB), a group of rare, inherited genetic skin conditions that cause fragile skin and blistering after minor injuries.

Please come and join us for a night of music, celebrating our Sam’s life and her birthday and please give generously.

Thank you.

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Donation summary

Total
£154.87
+ £30.00 Gift Aid
Online
£154.87
Offline
£0.00

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