update: Sadly, Brooke’s dad Greg passed away peacefully on Thursday 6th Feb 2025. My thoughts are with Brooke, Mollie, Danial & mum Julie x

Everybody has heard of Rob Burrow and seen images of him on the screen before he sadly passed last year but I have two friends who have been living with MND for over 10 years, Cath Muir and Greg Maddison. I see first hand the effect it has on themselves, their family, friends and loved ones. It is cruel beyond belief.

Cath and Ian Muir live over the road from me and Gregs daughter, Brooke works with me. Both families are incredibly resilient and care for their loved ones at home, which means around the clock care which is beyond tough physically and emotionally. I am in complete awe of both families and their ability to dig deep, fight for their loved ones, provide the best care and yet still smile!

I am not Kevin Sinfield and certainly won't be completing 7 ultras in 7 days but to celebrate my 50th year on this planet, I will be and am training ( A LOT) to complete two marathons in 2 weeks, both in sub 4 hours!! I will be running 26.2 miles in the Manchester Marathon on April 27th and together Brooke and I will be running the Leeds MND marathon on 11th May. I would like for everyone who would have wished me happy 50th birthday to donate, everyone who would have sent a card, please donate what you would have spent on a card and stamp & to those who would have bought me a drink or purchased me a gift, PLEASE DONATE. There is not a single thing anybody could give me that will mean more than donating and making a difference to the MND community. It really means a lot. I know how hard you all work for your money, so THANKYOU.

Below is more information on Motor Neurone Disease ( MND)

Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.

MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.

Although there is currently no cure for MND, symptoms can be managed to help you achieve the best possible quality of life.

We need your support.

£120 could provide an overbed table, making it easier for someone with MND to eat, drink and read safely and comfortably in bed

£280 could fund the coordination of care for someone with MND at a Care Centre for a year

£500 could provide a tablet device with specialist communication software, allowing someone to communicate with loved ones