I am raising money for The Noah Jordan Foundation in memory of our son Kit Baddeley and will attempt to complete the Three Peaks Challenge in under 24hrs in June 2026.

Kit was born in July 2023 and as his little personality developed, we realised his beauty was both inside and out. He simply loved life; people, animals (particularly bees 🐝 and giraffes 🦒), music, "dancing" and gave THE BEST cuddles. He lit up every day with his smile and we couldn't believe how lucky we were to have him.

We celebrated Kit's 1st birthday in July 2024 and 2 days later he was unwell with vomiting and was sleepy. We took him to A&E to find he had a very low blood sugar which prompted more investigations and admission. Blood tests revealed he was in acute liver failure and we were transferred to Birmingham Children's Hospital the next morning. His liver recovered and we made it home 3 weeks later but Kit had become increasingly weak and we knew something was terribly wrong. Two days after discharge, we were called into a meeting with the metabolic and neurology team to be given the devastating news that Kit had POLG related mitochondrial disorder (Alper's Disease in his case). There is no cure and given his age and presentation, he was likely to deteriorate very rapidly. We were referred to palliative care.

Thanks to the fantastic community nursing team and our palliative care consultant, we managed to keep Kit at home a happy and comfortable. We made some wonderful memories as a family and will treasure these forever. Kit passed away peacefully on 15/09/2024 with us lying next to him.

Kit has left a void in our lives which can never be filled. We think of him every day and be grateful that we got to love him for an all too brief 14 months. We plan to honour Kit's memory by raising money for, and awareness of mitochondrial disease which affects more than 1 in 5000 people and for which there is no known cure.

Please donate anything and all that you can; we hope to help find a cure and spread awareness of such an unknown and underfunded condition and to use Kit's legacy for something positive.

The Noah Jordan Foundation funds research, to develop treatments and find a cure, for rare terminal Paediatric Mitochondrial Diseases. The Charity also raises awareness of these rare diseases and supports those affected.

The Noah Jordan Foundation (RCN 1208933)

Website: www.tnjf.org.uk

Instagram: https://www.instagram.com/noahsfoundation/

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Email: contact@thenoahjordanfoundation.org.uk