Hello everyone,

We're the Colhoun Family- Aaron, Michelle, Grace and AJ.

This October13th - November 13th, we’re lacing up our shoes for Walk for WAGR – a family challenge to raise vital funds for the International WAGR Syndrome Association.

Our goal? To walk the distance from our hometown of Littlehampton to Great Ormond Street Hospital – around 90 miles – without leaving our local area.

Every step we take will be tracked and added to a virtual route until we “arrive” at GOSH, a place that means so much to families living with WAGR syndrome.

WAGR syndrome is an ultra-rare genetic condition that can cause a range of health challenges.WAGR Syndrome effects 1 in a million births, and there are only around 500 known cases of the condition world wide, and Grace is one of those 500 ❤️

By supporting this fundraiser, you’ll help fund crucial research, family support and awareness, making a real difference for children and parents around the world.

👉 How you can help:

Sponsor our miles – every pound counts.

Share our page to spread the word.

Join in by walking with us locally or cheering us on online.

Together, step by step, we can bring hope and support to families affected by WAGR syndrome.

Thank you for standing with us 🦓

Love,

Aaron, Michelle, Grace & AJ x