As many of you already know, my sister and I both live with Limb-girdle muscular dystrophy — a rare, progressive degenerative muscle disease that slowly weakens the muscles over time.

LGMD affects everyday life in ways many people don’t see. Things most people take for granted — walking long distances, climbing stairs, standing for long periods, balance, strength and mobility — can become physically exhausting and increasingly difficult. Because it is degenerative, the future can feel uncertain. Symptoms often progress over time, impacting independence, mobility, mental wellbeing and quality of life.

Living with LGMD has shown us just how important awareness, support and research truly are. There is still so much that people don’t know about this condition, and more funding is desperately needed to help improve treatments, support families affected, and continue vital research towards better outcomes for the future.

Throughout July, I will be taking on a huge personal challenge — walking 150 miles to raise money and awareness for those living with LGMD. Every single mile will represent the daily challenges faced by people living with muscle-wasting conditions, including my sister and me.

This challenge won’t be easy, but neither is living with a condition that progressively takes strength and mobility away.

Any donation, no matter how big or small, would mean the world to us. Even simply sharing this page can help spread awareness and make a difference.

Thank you so much for your support, kindness and encouragement throughout this journey. Together, we can help push for more awareness, more research, and more hope for the future. 💙