The RTS Support Group is a registered charity funded almost entirely by fundraising and voluntary donations.

We exist to provide support to families and carers of people affected by RTS, raise awareness of RTS amongst the medical community, and encourage and support research into the cause and effects of RTS.

The charity supports individuals and families, produces and distributes information on research, medical and policy developments and arranges social family get-togethers to create a supportive network for RTS families.

On 21 May 2026, we were blessed with the arrival of our daughter, Hope. Following genetic testing, she was diagnosed with RTS. Like many families, we had never heard of this condition before her diagnosis.

I am taking part in this event to help raise awareness of RTS and support the vital work being done to improve the lives and future of everyone affected by this condition. Every contribution, no matter how small, helps bring us one step closer to a better future for individuals and families living with RTS.