Story
Thanks for taking the time to visit our JustGiving page.
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As part of celebrating Lily’s upcoming 2nd birthday in October, we’re raising money for AngelmanUK, the charity supporting families living with Angelman Syndrome — a condition caused by a change on chromosome 15.
To honour Lily’s birthday and her journey, our suggested donation tiers are symbolic:
£2.15 — Lily is turning 2, and Angelman Syndrome affects chromosome 15
£21.50 — another option carrying the same meaning
£215 — for anyone who would like to / is able to make a bigger impact
This is also why are our overall target is £2150.
Any amount is SO GRATEFULLY received, thank you ☺️
And as part of our celebrations, our wonderful friend Sam will be running the Great North Run in Lily’s honour, helping us raise even more awareness and support for AngelmanUK.
This past year, between Lily turning 1 and 2, was the year we received her diagnosis. It was a year of learning, adjusting, and finding our way — and AngelmanUK became one of the places we turned to for support.
AngelmanUK provides:
Family support and guidance for newly diagnosed children
Specialist information for parents, carers, and professionals
Community events that help families feel less alone
Funding for research into treatments and improved quality of life
Advocacy to raise awareness and understanding of Angelman Syndrome
Every amount tells a little piece of her story.
Every donation helps families like ours feel supported, informed, and seen.
Thank you for being part of Lily’s birthday in the most meaningful way 💙
