Story
Help us Conquer Duchenne and save thousands of lives.
I’m taking on a challenge of Extreme Abseiling down the tallest tower available in Europe. This is all to support a local Leicestershire charity – ALEX’S WISH. By taking on this challenge I would like to raise awareness about Duchanne Muscular Dystrophy. A condition which is only passed through mothers DNA and affects 1 in every 3,500 boys born.
The charity is run by our friend, whose son Alex has Duchanne.
Alex’s Wish was set-up by Emma and Andy in late 2012 to help raise vital funds to help bring about effective treatments and ultimately a cure for this devastating condition. The Charity is named after their son Alex was diagnosed with Duchenne in April 2010.
Alex’s Wish is a charity set-up to eradicate Duchenne Muscular Dystrophy, the most aggressive form of Muscular Dystrophy. It results in progressive muscle wasting. Every single muscle is destroyed due to a lack of protein. It also affects the heart and lungs as these are muscles too.
• Boys with Duchenne will be in a wheelchair by the time they’re 10 years old.
• Life will be drastically shortened. Boys typically only live into their mid-twenties.
• There are no treatments other than steroids which have serious side effects.
This generation of children could be the ones to survive this condition but only if action is taken now. Alex is now 16 years old, and time is not on our side if we want new treatments to help save him and others of similar age.
Without funding, our vision will not happen. Please help us end Duchenne!
