Every other day in the UK, a baby is born who may develop serious mitochondrial disease. The Lily Foundation was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from mito at just 8 months old. Finding little information or support to help her, Liz set out to provide answers for herself and others in her situation. The charity exists today to support affected patients and families, raise awareness of this little-known but incurable genetic condition and fund research into treatments and an eventual cure.

This week is Mitochondrial Disease Awareness Week. As researchers working on mitochondrial disease, we see first-hand how much more we need to understand and how vital funding like this is to get us there. Please consider supporting the Lily Foundation's work.