Join us for a Sunflower party! We are raising vital awareness and funds to grow hope for our Stalo and other people all over the world affected by Malan syndrome.

Malan syndrome is a rare, genetic neurodevelopmental disorder caused by a mutation in the NFIX gene on chromosome 19. The NFIX gene is a protein-coding gene that plays an essential role in brain and musculoskeletal development. Currently, there are only ~400 people in the world diagnosed with Malan syndrome. However, it is estimated that thousands of people with the condition remain undiagnosed.

The clinical features of Malan syndrome vary but may include tall and thin stature, large head size, global developmental delay, low muscle tone, speech delay, vision impairment, seizures, sleep difficulties and behavioural challenges.

Like the sunflower, those affected by Malan syndrome are tall, resilient and bright.

Please visit www.malansyndrome.org to learn more.

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The party - when and where:

Saturday, 21 February 2026, 2-5 pm

Cambridge Road Methodist Church, Kings Heath

What you can expect: bake sale, bouncy castle, crafts, music, tombola raffle