My dad and I are running the Manchester Half Marathon next month to raise awareness and support for Neurofibromatosis Type 2 (NF2 - SWN).

Around 1 in 35,000 people are affected by NF2, however this cause is personal to us as my sister lives with this everyday. NF2 is a rare genetic condition, which affects the nervous system and can lead to benign tumors, hearing loss, facial palsy and other serious complications.

Having had two major surgeries already, including brain surgery, numerous procedures, monthly treatment and facial physio, her strength and resilience has inspired us to honour her journey and help fund research and support for others affected by NF2, for a future with better treatments, and one day, a cure.

As it is a rare condition, treatment and research is limited, with a trial currently taking place in Manchester, which needs funding to continue.

NF2 Biosolutions UK is a patient led charity, where all money raised goes towards funding research. We’d love to be able to contribute to this amazing charity further!