Join the campaign to fundraise for a Residential Activity Weekend developed primarily for children and young people affected by erythropoietic protoporphyria (EPP).

EPP is a rare genetic condition that causes excruciating pain and skin damage on exposure to sunlight. Symptoms make daily activities, including education, sport and personal relationships a huge challenge – impacting negatively on physical health, relationships and, in the long-term, financial stability and psychological and emotional wellbeing.