Running the Rob Burrow Leeds Marathon 2025 for BDFA

This year, myself, alongside two of our weekly run club regulars, Emily and Phil, will be taking on the Rob Burrow Leeds Marathon 2025 to raise money for the Batten Disease Family Association (BDFA).

We’re doing this in support of one of our run club members, their family, and their community. Until Anna-Mara joined the Training Teacher Run Club, we had little to no idea what Batten disease was. But through her, we’ve come to learn about this devastating condition and how it affects her 5-year-old daughter, Beatrice.

What is Batten Disease?

Batten disease is a rare and life-limiting neurodegenerative disorder that primarily affects children. It causes progressive loss of motor skills, vision, and cognitive ability, eventually leading to severe disability. There is currently no cure, but research and support services funded by charities like BDFA are crucial in helping families affected by this disease.

As a run club, we wanted to do something to raise awareness, support ongoing medical research, and help families who are facing the challenges of Batten disease every day. Taking on 26.2 miles seems like a small effort compared to what these children and their families go through.

Every donation, no matter how small, will make a difference. Your support will help fund research, provide resources for families, and raise awareness of this heartbreaking disease.

We are incredibly grateful for any contributions, words of encouragement, and shares of our page. Your support means everything to all those impacted by Batten disease. Thank you.