Nick's 'Race to the Stones' for Cure DHDDS

Nick Keem is raising money for Cure DHDDS

Race To The Stones 2025 · 12 July 2025 to 13 July 2025 ·

Cure DHDDS is founded by parents of children diagnosed with a DHDDS gene mutation. We are not scientists or medical professionals but parents trying to find the best way of helping our children. Our mission is to support families diagnosed with DHDDS gene mutations, help drive research into these little-known mutations, and help find treatments so that those affected by variants in the DHDDS gene can lead the best life possible. Our vision is a world where there is a cure for everyone with a DHDDS variant.

Story

On July 12th, I will be running the Race to the Stones trail ultra-marathon to raise money for Cure DHDDS. This is a 100km non-stop run along the ancient Rigeway (Britain’s oldest Trail) from Lewknor to Avesbury.

Cure DHDDS was set up by my good friends Charlie and Mel Dixon, who in 2022 discovered that two of their three children have an ultra-rare gene mutation, called DHDDS. There are only 70 known people in the world who have this condition. There is little to no funding and there have been very few, if any, studies into the condition. Mel has been at the forefront of bringing together scientists, researchers and other families to try and source as much information as possible, with the hope of giving all those affected by the mutation the best possible chance of finding a cure.

More info can be found here: https://www.curedhdds.org/

Your help and contributions go directly to funding this vital research and I would be very grateful for your support.

Race to the Stones Race to the Stones 2025 - Threshold Trail Series. If anyone fancies joining, there are still some places…..

https://www.thresholdtrailseries.com/threshold-trail-series-2025/race-to-the-stones/

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£6,086.73
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£6,086.73
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£0.00

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