Hi, my name’s Nicola, I’m 24 and from Manchester. Around a year ago, after months of excruciating headaches, countless GP visits, and two hospital trips, I was finally diagnosed with Idiopathic Intracranial Hypertension (IIH).

IIH is a rare condition where pressure builds around the brain, often causing severe headaches, vision problems, fatigue and brain fog. It affects around 1 in 100,000 people, but for women of childbearing age the risk rises to 1 in 20,000.

Before my diagnosis, I was told it was “just a migraine” or “because of my weight.” But I knew something wasn’t right. After scans, tests, lumbar punctures, and a week in hospital, I finally had answers that would change everyday life.

This past year has been one of the hardest of my life. I’ve lost memories, struggled with work and daily tasks, and had to grieve the life I once knew. IIH doesn’t just affect your health, it impacts every part of your life.

That’s why I’m taking on the challenge of walking 200,000 steps in one month. To many people that might seem small, but for me it’s huge. It’s a way to look after my brain health, stay motivated, and raise awareness of a condition that so many people have never even heard of.

I would be so grateful for any support, whether that’s a donation or simply sharing my story to help spread awareness of IIH. 💙