Our 9 year old son Freddie is the eldest of our 4 children. He is such a happy, kind and relaxed big brother to his three little brothers, he is an absolute joy to be around. He’s our little friend. Freddie unfortunately was diagnosed with a rare childhood cancer in November 2019 at 6 years old. It’s called Ewing sarcomawhich was metastatic (in more than one place). It’s an aggressive cancer that creates tumours in the bone and soft tissue that can spread to anywhere in the body, very quickly. We’d never heard of it (or sarcomas really for that matter) before he was diagnosed. Our world crumbled around us as they told us the news and we stepped into this frightening new world that we would now be living and trying to understand it all. Stepping in to the ward for the first time seeing children with no hair, tubes everywhere with tall beeping stands at their side, it hits you like a train...this is really happening. After months of aggressive treatment and watching Freddie become a shadow of his former self, we decided we must do all we can to help raise as much money to find the dream - a cure, and that’s what we do alongside the amazing bone cancer research trust, who we are so lucky to have to fight our corner.

The Bone Cancer Research Trust is dedicated to saving lives & improving outcomes for people affected by primary bone cancer. Despite being small, they fund more research projects exploring primary bone cancer than any other organisation. Other large UK cancer research charities do not prioritise bone cancer patients, in 2019 just 0.028% of their research spend went to bone cancer – not even close to 1%!

Last year alone, Bone Cancer Research Trust committed an incredible £807,824 to pioneering bone cancer research - to save lives!