Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system, usually leading to temporary or long-term paralysis. Around 80% of those with GBS will make a good recovery, but between 5-10% of people will not survive and the other 10-15% may be left with severe mobility or dexterity issues. GAIN helps people understand and manage both acute and chronic variants of the syndrome, raises awareness, and promotes clinical and non-clinical research into these conditions. For more info visit www.gaincharity.org.uk
After leading a fairly fit life for 64 years I was diagnosed with CIDP in 2021, having been admitted to hospital on 1st June after losing the use of my legs and hands. I spent six months in hospital and a rehab unit where I regained enough mobility to use a wheelchair. I was discharged on 24th November 2021, fully expecting to live the rest of my life in a wheelchair. Since that time with the help of my physiotherapist I have learnt how to walk again, slowly, at first with a frame, then Rollater and now using sticks. My challenge to myself is to get fit enough to walk 5 kilometres around a field in Cangate, Norfolk, on the 10th June 2023.
By supporting me in this challenge you will be helping others suffering with the condition which hit me out of the blue, which is very rare and little heard of. You will be helping to fund research to understand and treat both GBS and its chronic cousin CIDP. All donations however small or large will be gratefully received, or join me on the day, I will need the encouragement.