Thank you for your donation to the Myotubular Myopathy Trust on behalf of Noah's Rainbow Wish.

Sadly, in 2021, at only 9 month old Noah passed away surrounded my love. Unfortunately, Noah was born with an extremely rare genetic condition called Myotubular Myopathy, this life limiting condition is physically and emotionally distressing, but with the full support and guidance of the Myotubular Myopathy Trust, Noah and the family felt encouraged and to battle on regardless of the outcome.

This beautiful charity’s endless dedication to the families and their search in finding a cure for this cruel condition, is what makes this charity is so special. Having lived and dealt with this condition it is Noah's family’s wish that no one should have to go through the immense pain and suffering of losing their child, beloved son, grandson, nephew and friend.

Together on Sunday 22nd September for this year’s Manchester Hope Walk we will be walking a 10K along the Bridgewater Canal Banks, Manchester. We walk together in hope for a brighter future and big rainbows 🌈

All donations to this wonderful cause will be gratefully received and welcomed by the families that benefit them. Thank you.