OG’s fundraiser for The Butterfly AVM Charity Limited

Oliver Grammer is raising money for The Butterfly AVM Charity Limited

Ironman · 29 June 2025

The Butterfly AVM Charity was created to raise funds for much needed Research into finding a cure for Arteriovenous malformations. These are abnormal connections between arteries and veins anywhere in your body. We also want to raise awareness and support for sufferers & their families .

Story

On 28th June, I will be attempting the Ironman challenge (a 3.8km swim, 180km cycle and 42.2km run back to back 😅) in Nice, France.

I'm doing this to raise money for The Butterfly AVM..and also to inflate my ego even more (some of you might say this isn’t possible 👀).

All jokes aside, The Butterfly AVM is an amazing charity that has helped the lives of so many AVM sufferers and their families. For those who don’t know, the charity was founded by Nikki Lilly and the Christou family. Since her AVM diagnosis aged 6, Nikki has faced many challenges and countless major operations. Despite this, Nikki has gone on to achieve a number of remarkable things including receiving a Pride of Britain Award for courage and more recently speaking at the United Nations as an advocate for people with visible differences. Nikki is an inspiration to so many people worldwide and I feel honoured to know her.

All the money raised for The Butterfly AVM will help to continue building awareness, supporting and raising funds for much needed research into the understanding of AVM’s and continue to help the lives of AVM sufferers like Nikki.

Please give do generously for this worthy cause. Every donation received will help me to push through the inevitable pain on the day (think chafe, blisters, muscle cramps etc) and will also help to make my insufferable Instagram exercise posts worth it (@OGprojectironman if you’re not already following).

Thank you for your support.

Much love, OG

Donation summary

Total
£4,105.00
+ £955.00 Gift Aid
Online
£4,105.00
Offline
£0.00

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