TBCD is a severe and unpredictable neurodegenerative disorder. The majority of those diagnosed will have symptoms present from birth. TBCD children experience early onset hypotonia (muscle weakness), epilepsy, global developmental delays and, in many cases, breathing & feeding difficulties.

Little Leo was born with this and was the first child in the UK to be diagnosed with TBCD. The TBCD gene mutation affects his brain, central nervous system and his muscles. As a result he has epileptic seizures and low muscle tone, which means he has difficulty moving and breathing.

For more info, please visit :

https://www.alifeforleo.com/

Leo is the Grandson of, and lives with, one of our colleagues Kevin, so some of us are taking on this challenge to do what we can to support this amazing family. Taking part are 38 of our amazing colleagues from across BMS and a couple of partners / children : Matthew Cocklin, Oliver Spooner, Anneliese Treadwell, Ross De Luca, Oliver York, Stephen Daly, Rocky Mateer, Maison Dove, Tanya Sharma, Lucy Beasley, Melissa Bolton, Peter Gilmore, Tammy Hall, Courtney Wardell, Jessica Leigh, Sophia Downham, Dan Coffey, Sam Murray, Sean Cahill, Emily Weighton, Olivia Bellingham, Natasha Mitchell, Charles Herold, Chelsey Knight, Dennis Farmer, Sean Tibby, Joshua Hurrell, Keegan Risley, Darcie Wardell, Oliver Newman, George Plumb and John Barrett, Ian Gormley, Rafa Ramirez O'Shanahan, Toby Underwood, Barbara Pritchard, Kevin Andrews and Logan De Luca.

We know that money is generally in short supply for a lot of people right now but even the smallest donation would be greatly appreciated and will assist in the fight.