At 13 I was diagnose with Usher Type 2 and thanks to Usher Kids UK for their support, I’ve been able to lead a normal life by passing my GCSEs and A Levels. To help with my mental health I started running and find I really enjoy it and I’m not too bad at it either! I’m challenging myself this year to complete the Great South Run with my two guides by my side, my aim is to complete it under 2 hours, so wish me luck by donating!

Usher Kids is about the advancement of the empowerment of children and young people (aged 0-25yrs) and their families living with Usher syndrome in the UK, through the provision of support, information, connections and advocacy.