Emma and Matthew’s son Jack was diagnosed with Duchenne muscular dystrophy in October 2013, just before his third birthday. They set up a Family Fund, Fighting Back for Jack, to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.

Jack is like any other cheeky, smiling, fun loving boy, who loves playing, running, kicking his football and watching Star Wars. He doesn’t understand his condition, but just continues what he loves doing and doesn’t let any obstacles get in his way.