In the September of 2021, my nan passed away with Progressive Supranuclear Palsy (PSP), a rare neurological condition which leads to the gradual deterioration and death of specific volumes of the brain.

Before finding PSPA, like many other families, we knew very little about the condition, including how best to support our loved ones with the illness. We want others to benefit from the support PSPA can offer which is why my cousin, Daniel Rees, and I, will be running the 2025 London marathon to raise money and awareness for other families who find themselves in similar circumstances.

It is estimated that 5000 people in the UK are currently living with PSP, however neurologists believe this figure could be closer to 10,000. It is estimated 60% of those currently living with PSP in the UK are misdiagnosed with conditions such as Parkinson's due to overlapping symptoms like problems with balance, walking, coordination, and eye movements. However, there are distinguishing features in PSP, such as prominent early backwards falls, fixed gaze, and more stiffness and slowness. Receiving an early diagnosis provides people with the opportunity to receive more tailored support and symptom management.

PSPA is the only UK charity dedicated to improving the lives of people living with Progressive Supranuclear Palsy (PSP). The charity provide information and support for people affected by PSP whilst funding research into the causes, treatment, and eventually a cure.