When i was 20 years old i was diagnosed with CTEPH which is a rare and progressive form of pulmonary hypertension caused by chronic blood clots in the lungs/ arteries near the heart after blood clots in my lungs were unfortunately missed by doctors for weeks. while i was in hospital for this, they found pulmonary hypertension on scans which they thought would go away as the clots broke down but sadly this wasn’t the case and in april 2024 i was diagnosed with CTEPH. this diagnosis completely flipped mine and my family’s lives upside down, over the last year i’ve had various procedures and treatments at Royal Papworth Hospital & Hammersmith to try and slow down the progression of this awful disease. This condition while it can be treated there is no cure for some patients such as myself and the medication i’m currently on has only been around for a few years, before this the life expectancy for a patient with CTEPH was just 1-3 years. As someone who knows firsthand how hard living with pulmonary hypertension can be, I’d like to raise some money to go towards the Pulmonary Hypertension Association UK 🩷

The PHA UK receives no government funding, so every penny donated plays a vital role in helping them support people to live better lives with PH🩷