Paul Taylor

Paul's fundraiser for Batten Disease Family Association

Fundraising for Batten Disease Family Association
£880
raised of £5,000 target
by 22 supporters
Donations cannot currently be made to this page
Bike,climb, kayak, 1 October 2023
Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
We fund research and support families to find a cure to Batten disease

Story

We are are really grateful of your support and would kindly ask to split your donations between the bdfa and stevie so we can help other families living with batten please use the link below

https://www.justgiving.com/crowdfunding/paul-taylor-161?utm_id=1&utm_term=PB6KzKDQw

This year along with the support of the bdfa and Energise Energy Solutions around 16 of us will be cycling 17km through snowdonia national park, climbing mount snowdon then kayaking 4km back to base. We are undertaking this huge task to raise much needed funds for the Batten disease Family Association.

the Bdfa are a charity that supports families with the devasting news of a diagnosis of batten disease and have been a massive support to us on our batten journey. We would really like to raise some funds so that they can continue the amazing work they do with families like ours up and down the U.K

thankyou for taking the time to visit my JustGiving page.

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About the charity

Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Donation summary

Total raised
£880.00
+ £120.00 Gift Aid
Online donations
£880.00
Offline donations
£0.00

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