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Paul's fundraiser for Rare People - the research charity

Paul Wiliamson is raising money for rare people - the research charity

The Altra Brighton Half Marathon 2026 · 1 March 2026 ·

Rare People – The Research Charity brings hope to those affected by rare genetic neurodevelopmental conditions — illnesses so uncommon that most are told there’s no chance of a treatment. The first of many studies we will fund, is looking at a potential treatment for DeSanto-Shinawi Syndrome

Story

I am delighted to be running the Brighton Half Marathon on March 1st to raise money for Rare People. Rare People exists to fund medical research into improving the lives of children with rare genetic neurodevelopmental conditions.

The charity was founded by Dr Laura Galloway and Professor Rob Galloway - two of my fellow football coaches - after their daughter Frankie was diagnosed with DeSanto-Shinawi syndrome, a condition affecting fewer than 300 people worldwide.

All donations will be dedicated to advancing rigorous, clinically meaningful research. These conditions are among the most under researched and under-funded areas of medicine.

If you want to find out more about Rare People - more information can be found on their website. https://www.rarepeople.org/

Any contribution that you can make would be hugely appreciated.

Paul

Donation summary

Total
£1,026.70
+ £220.26 Gift Aid
Online
£1,026.70
Offline
£0.00

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