Paul's fundraiser for The CJD Support Network

Paul Robinson is raising money for The CJD Support Network
In memory of Colin Robinson
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Hamburg Marathon · 28 April 2024 ·

The CJD Support NetworkVerified by JustGiving
RCN 1097173
The CJD Support Network offers advice, information and support for patients, carers and professionals involved in any form of suspected or confirmed CJD. We offer emotional and practical support; disseminate new information as research develops and offer advice for those who may be deemed at risk.

Story

Nearly 15 years ago in May 2009, Dad was diagnosed with a terminal illness called sporadic CJD, a very rare and fatal disease which causes damage to the brain and nervous system and severely worsens over time. Just 1 or 2 people in a million die from CJD each year and unfortunately we were one of the unlucky ones.

There is no cause and no cure for this horrible illness.

Just 4 months later in September 2009, Dad had passed away.

In April, I will be running the Hamburg Marathon in memory of Dad and will be raising money for the CJD Support Network.

They are the only UK charity registered to the disease and ensure that appropriate practical and emotional support is available for all strains of CJD in the UK.

All donations are hugely appreciated for a cause that means a lot to me and my family.

Paul x

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Donation summary

Total
£3,863.07
+ £892.00 Gift Aid
Online
£3,863.07
Offline
£0.00

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