My 16 year old Daughter Lilly was born with Neurofibromatosis type 1 (NF1). It was a random genetic mutation as neither my wife or myself have the condition. The condition causes tumours to form on her nerve endings; both internal and external, meaning that she has to endure daily pain of varying degrees. Some days are much better than others but more often than not she is putting up with pain or itching. So far she has only had to have one tumour removed, at the age of 20 months. It was in her fontanelle and stopping her skull from closing. She has a fairly large lump on her right hand that occasionally makes writing uncomfortable. She has had some learning challenges and suffers with anxiety amd ADHD, all of which are connected to NF1. She regularly sees a psychologist as well as a specialist; who checks for new lumps and decides whether further investigation is needed. Lilly is an incredibly strong, young lady, whom we are immensely proud of. She continues to push herself and achieve to the best of her abilities. Having completed her GCSEs and achieved what she needed, she is now embarking on her college journey to start the ball rolling in achieving her dream career of a paramedic. We could not be prouder!

Please help me raise as much money as possible so this amazing charity can keep supporting people like Lilly, it would mean the world, thank you ❤️

I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditons that cause nerve tumours.

They are dominant genetic conditions, which means that they can be passed on in families from one generation to the next through genetic inheritance. Similarly, about half of nerve tumours cases recorded have no previous family history of the condition. In other words, it can occur totally “out of the blue”.