Fundraising Skydive 28.06.26

This charity is so close to our family’s hearts as tragically we lost our beautiful daughter Stephanie at only 7 months old to SMA type 1. Recent events have thankfully raised the profile of this horrible condition and in her memory and to help other families who have had their world turned upside down by this condition. I want to make a difference if I can. Our lives changed forever when we lost Stephanie but I want to ensure all is done to prevent other tragedies. I appreciate times are hard but every little helps . Thank you so much for reading this and supporting this cause.

Ps - I’m terrified of heights !!

Established for almost 40 years, SMA UK are a charity that supports, campaigns and advocates so that everyone affected by Spinal Muscular Atrophy can access the best care, services and treatments, and benefit from continued research. We offer adults, young people, parents, relatives and friends emotional support, practical advice and guidance from our experienced team and provide reliable health and social care information about SMA. We also provide and distribute free multisensory toy packs for infants who are diagnosed with SMA.