Story
After years spent fighting against a cruel neurological condition, Pete finally passed away peacefully on August 2nd, 2024.
Pete was diagnosed with a combination of 2 similar conditions- Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). Both conditions are extremely rare, affecting approximately 5 out of 100,000 people, and often misdiagnosed as Parkinsons Disease or Stroke. Pete was lucky in a sense, that his Neurologist suspected this at an early appointment. More information can be found here.
Pete expressed a strong wish to help and support other PSP/CBD sufferers in any way he possibly could. For this reason, as a family we have decided not to host a formal funeral. Instead, Pete is to be cremated, followed by private celebrations of his life, at a later date.
We are asking of people who remember Pete fondly, to kindly show your respects by sending a donation to the PSP Association - the only UK Registered Charity providing research and support into these rare conditions. We will be fundraising for PSPA on a regular basis going forward, and would love to have your support.
Please share far and wide - awareness is desperately needed into these conditions.
Kind regards
Pete, Pat and Family