I run for Rosalie...

Rosalie was diagnosed with Rett Syndrome in 2018 and since then I've been doing my best as her dad to raise awareness and funds for supporting her and people living with Rett as much as I can. Being a dad to someone with Rett means I'm far more aware of what my body can do and how much we often take for granted in being able to move freely. I run, not just because I enjoy it, but it also provides a way I can let others know about Rett Syndrome and charities like Reverse Rett. Whatever support you can give, it will go to helping research that will lead to making the lives of those living with Rett better.

Why Reverse Rett?

The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway.

Much is required of our small, rare disease organisation at this time. At Reverse Rett, we are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep our work going.