Phil's fundraiser for PoTS UK

Phil Tilley is raising money for PoTS UK
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100 Mile Gravel Bike ride · 22 June 2024

PoTS UK was founded by a group of healthcare professionals with PoTS who recognised the need to increase awareness of this condition. We are passionate about educating and supporting patients, family, friends and medical professionals about this widely unrecognised and misdiagnosed condition. We do this by sharing up to date evidence and resources. We also work with healthcare professionals and other charities in the UK and abroad, and advocate for our members by seeking better NHS services, more research, and targeted treatments for people with PoTS.

Story

A week before I enter the next decade of my life I have decided do a challenging 100 mile off road bike ride. Riding from Chepstow to Cardiff mainly off road and via Brecon Beacons and lots of hills https://allmountainadventures.wales/events/solstice-sundowners/

Postural Tachychardia Syndrom (POTS) is not well understood and yet many people suffer from it. Our daughter suffered with fatigue for 10 years before she was diagnosed with POTS.

Simply standing up can be a challenge for affected people as their body is unable to adjust to gravity.

PoTS is due to an abnormal response by the autonomic (automatic) nervous system and is characterised by orthostatic intolerance (the development of symptoms when upright that are mostly relieved by lying down).

Symptoms include palpitations, lightheadedness, fatigue, sweating, nausea, fainting and headaches, and are associated with a persistent increase in heart rate from the lying to upright position.

There is so much we don't know about the illness and not many people in the medical profession who understand how to diagnose or provide support. https://www.potsuk.org

If you don't feel like donating then please take a look at the site and familiarise yourself with the syndrome.

Donation summary

Total
£795.00
+ £184.00 Gift Aid
Online
£795.00
Offline
£0.00

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