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Phil's London Marathon fundraiser for The Fragile X Society (Again)

Philip Malsbury is raising money for The Fragile X Society
In memory of Douglas Malsbury

London Marathon 2026 · 26 April 2026 · Start fundraising for this event

The Fragile X Society is the only charity dedicated to individuals and families living with Fragile X syndrome - the most common cause of inherited learning disability. We are continually working to improve the quality of life for all people impacted by Fragile X.

Story

I will be running the London Marathon in April in memory of my wonderful father who sadly passed away just under three years ago. You may remember that I ran the marathon two years ago in his memory (https://www.justgiving.com/page/philip-malsbury-2024).

In fact it is exactly 798 days since he passed (as of the 30th January 2026 as I type this) because I have run every day since then in his memory. Some people think it's crazy (ok, everyone does) but it is my way of remembering him and allows me to have a daily chat with him in my head as I run.

I will be marking the event by again running for a charity close to my family's heart, the Fragile X Society.

The Fragile X Syndrome is a genetic condition that causes intellectual disability, behavioural and learning challenges and various physical characteristics. Thought it occurs in both genders, males are more frequently affected than females, and generally with greater severity.

At least, two children in my wife's extended family are affected by the Fragile X Syndrome. This charity has been fantastic as a support mechanism, both for the family and the children involved. As my wife's family is a large one (her mother was one of twelve children!) they formed part of a significant study carried out by the Charity into the Syndrome. Thankfully, my wife is not a carrier so our children has not been affected. It is for those members of the extended family that have been impacted that I am looking to support in my charitable endeavors.

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Thanks for taking the time to visit my JustGiving page.

Donation summary

Total
£316.00
+ £47.50 Gift Aid
Online
£216.00
Offline
£100.00

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