Pilar is running Royal Parks half marathon for Pseudomyxoma Survivor

Maria del Pilar Espejo Barthelmes is raising money for Pseudomyxoma Survivor

Team: Team PJ fundraising for Pseudomyxoma Survivor

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Royal Parks Half Marathon 2024 · 13 October 2024 ·

Pseudomyxoma Survivor aims to raise awareness of PMP and appendix cancers, to provide emotional and practical support and information to survivors and their families on our website and online community. We are also dedicated to raising funds for research into this extremely rare disease.

Story

My husband, John, was diagnosed with Appendix Cancer and PMP in August 2020. He underwent MOAS (the mother of all surgeries) and HIPEC (hot intravenous chemo) in November 2020 and required MOAS and HIPEC no.2 in November 2022. In total he had 5 organs removed and a layer of his peritoneum, and take daily medication to manage certain symptoms but on the whole he is in good health and live an active life. His last scan in November 2023 was NED - no evidence of disease. His next scan is in Nov this year and we are keeping positive :-)

Pseudomyxoma Survivor is a small charity dedicated to patients and family of PMP survivors. Your money will help in supporting ongoing research into immunotherapy treatments as well as providing immediate help to families as surgery requires a minimum 2 week stay in one of 2 specialist centres in the UK, either in Basingstoke or in Manchester plus a 3-6 month recovery period at home.

Pseudomyxoma Survivor is a non-profit organization, run by patients and caregivers. Pseudomyxoma peritonei (PMP) is a very rare cancer that generally starts in the appendix with mucinous cancer spreading in the abdomen.

Pseudomyxoma Survivor is a thriving support community supporting anyone whose life has been touched by PMP as well as appendix cancer and other peritoneal surface malignancies. They are completely dependent on voluntary donations. Their patron is Sean Hepburn Ferrer. Sean’s mother, Audrey Hepburn, passed away shortly after being diagnosed with PMP.

Donation summary

Total
£1,000.80
+ £162.75 Gift Aid
Online
£1,000.80
Offline
£0.00

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