Story
This is the hardest thing I would ever have to do. I’d ever have to write I have probably started this like a week or two before I’d have to post this. Not a lot of people ask what happened to Paisleigh but I know I only told family and close friends. I’d like to put Paisleigh’s story out there so people with little babies are aware that anything could happen. But this is Paisleigh’s story:
Gemma and Paisleigh woke up like a normal Wednesday morning the 25th January 2023. She was a little groggy. But I wouldent she was really ill. We did get ready and I took her to school. She stayed at school till half 11 like she normally would. She came out of school with the biggest smile and told me she had a sticker from her teacher. We did get her into the car but I told my mom she looked a little off. So me being worried. I phoned the doctors. We did get an appointment,as before the Wednesday Paisleigh was a little sick,and she had diarrhoea for around 8 days. &yes I had already taken Paisleigh to the doctors and the hospital multiple times in January alone. Wednesday Paisleigh seemed a little yellow in the skin,she was sleeping a lot and was licking her lips like she was dehydrated. We went to the doctors and they told us to go strait to A&E. They Dident know what was wrong but to make sure we get seen. We got to Russles hall hospital, because at this point Paisleigh would not walk or talk very well. They did make us wait,they also bloods and was trying to figure out what was wrong. Paisleigh’s body started to curl, like she was having a fit, but they were constantly telling me she was just very uncomfortable. We had a big doctor come into the room they put Paisleigh in and told us she was having a fit. That she would needs to be put into the recovery position. Paisleigh was very unresponsive at this point and was put to sleep. She had a CT scan on her body to see what was going on. They did come back and told us Paisleigh had a blood clot called hematoma. This was caused by a stroke.There was a lot of blood inside Paisleigh’s head. The pressure in Paisleigh’s head caused Paisleigh to be very poorly& we were transferred to Birmingham children’s hospital strait away. This is when she went into theatre for surgery.
Thursday the 26th. Paisleigh went strait into surgery. As the doctor on call that night had to admit her as everything was so serious. I’d say she was in there for around 4 hours. Paisleigh was so strong and showed the doctors that they was wrong and she was stronger then they thought. From the surgery, they had take a flap of bone from paisleigh’s skull to relieve the pressure as her head was to swollen to put a bolt to measure the pressure. She stayed stable until the morning after.
Friday the 27th. Paisleigh was taken to CT as all Paisleigh’s brain surgeons seemed concerned that Paisleigh’s head was getting more swollen and that the pressure was getting worse. Once this happened they did send her down for another operation to help relieve pressure on the brain by removing the brain flap on the opposite side and keeping it nice and safe inside her tummy till she got better. They were able to put a bolt in to be able to measure the pressure in Paisleigh’s head. They did this so they would make sure they were caring for Paisleigh’s brain in the right way possible. Paisleigh stayed stable over night,and was on loads of different medication to keep her as stable as possible.
Saturday the 28th January.
They put paisleighs brain to sleep to give her a better fighting chance of recovery. Where she was put on loads of medication to help with Paisleigh’s recovery.
3% satire Mannitol
Rocuronrim Vasopressin
Midazolam Clonidine
Fentanyl Choral
Thiopental Levetiracetam
Calcium Chloride Omeprazole
Potassium Cefotaxime
This was 14 different things to help Paisleigh’s brain and head to stop swelling to stop Paisleigh from having any more seizures and making sure they were resting the brain as much as possible. Later that day they did take Paisleigh’s bolt out as they thought it was reading incorrect vitals.
Sunday 29th. Paisleigh consultant, told me and Gemma that she would need as much rest as possible for her brain to get better.
Wednesday 1st of February: Today they told us that they would be taken some of the medications off Paisleigh to see how her brain would react. They took around 3 of the medications away and started to feed Paisleigh. They told us that Paisleigh would need a MRI as they were uncertain of the state of her brain.
Thursday the 2nd February.
Today was the day they sent her down for her MRI. As we was in the PICU,we was told that she would have been in her scan for a-least 3-4 hours. They took me and Gemma into a room with all of Paisleighs brain surgeons and all the nurses that looked after paislsigh that day. The scan showed the doctors that most Paisleighs brain did not survive and that if she did survive that she would be in a lot of pain & that she would not be mobile of able to feed herself. Which i Dident care about,as long as she was here with us. Paisleighs consultant, told us that he’d been watching Paisleighs breathing pattern and that she wasent breathing as good as they hoped. We got told that all the machines were keeping her alive& once she came off them that she would have stopped breathing. Me and Gemma was in complete shock and got told that we got to spend as much time we needed with her and that people could come and say there goodbyes.
2nd of February. Today we decided that we would want to spend so much time with her and making sure she knew we was with her 24/7 and always will be. We were took to a place called magnolia house and we got to choose who could stay in the room with us. It was around 3pm when we got took down,and they told us that once paislsigh came off the machine that we would have a hour or so with her. So we made sure we got loads of memories with her,held her and cried loads as we never thought that this would ever happen to us. &that Paisleigh would prove everyone wrong and come out of this.
Even though she did prove them wrong Paisleigh breathed for around 10 hours and she took her last breath. Around 1.23Am on the 03/02/2023. Even though we knew it was all happening we were still in complete shock that all this was still happening and that our baby girl,left us.
As everyone knows Paisleigh will always be a big part of my life and she means the absolute world to me and Gemma. We will always hold you close and make sure we talk about all our special memories we have.
365 days, a whole year that I haven’t heard your voice,saw your big smiling face. Holding your little hands and hearing your little snore. A year! Of wondering why or how& that everything would always be my fault. A year where I sat with you and knew you wasn’t coming home. A year of me shutting everyone out and thinking that my life isent meant to be without you. You are my one and only love. I can’t explain how much I love you but you are my little ray of sunshine. I hope you always know how special, important, and loved you are. You have been took away from me. But I hope you know that I will NEVER forget the love,you smiling face. And everything that comes with Miss paislsigh boo. You are my world.
I will really miss you. I hate this so much.
The whole year has gone so fast but everything I felt and everything I have done for you I will do every year. I will make sure that we spread your love and make sure people know that you are loved. This life is shitty,and I know that you did not deserve anything that happened to your happy little soul. I am so sorry I never kept you safe. But you will always be my special angel,my whole life I love you so much,Miss PJB🩷
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