“My wife Carran and I set up The Unbeatable Eva Foundation in 2021, after the loss of our daughter Eva who passed away in January that year. Eva was diagnosed with a form of brain tumour called DIPG in 2020 – DIPG is a very-aggressive brain tumour, which spreads like sand in jelly inside the pons, which is the area of the brain stem which controls all vital signals passing from the brain to the body – eating, mobility, sight, breathing etc…

Unfortunately, due to the location and nature of DIPG, it is terminal in every instance, and the average survival period post-diagnosis is less than 10 months. Eva was diagnosed when she was 9, and her journey with DIPG lasted for 12 months and 8 days – she was, and continues to be, an inspiration to all who knew her, and it was her idea that “when she got better” she would like to help other children who had the same ‘spot’ in the brain as she did.

As a charity, we support other families going through that same journey. We send out boxes filled with individually wrapped gifts, all tailored to what the child likes and wants – these include iPads, phones, laptops, gaming devices, toys etc… - and we fund memory making experiences such as spa days, weekend breaks, trips to centre parcs and so on. The premise of what we do is supporting families to make precious lasting memories together, as we know first-hand the importance of these in the short time you have after diagnosis.

We are entirely run by myself, my wife, and close family support, and all funds raised go back into supporting children and families affected by DIPG, and I thought I would also attach some photos of the types of things we send out, so that you can see what any money raised goes towards.”