Story

In April 2026, I’ll run my first marathon. 26.2 miles of grit, sweat, and stubborn determination. I’m running for my dad, Amrish Patel, and to raise awareness of a devastating disease: Progressive Supranuclear Palsy (PSP).

My dad was diagnosed with PSP in July 2023, after more than a year of being misdiagnosed with Parkinson’s disease. PSP is cruel. It is rare, aggressive, and incurable. In just two years, it has taken his ability to walk, speak, see clearly, and swallow. But not all of his mind. It’s a disease that traps you inside your own body and robs families of connection long before it takes life. All my dad has left now is palliative care.

Watching someone you love unravel while remaining aware of their own decline is difficult. I wish more people knew about PSP. I wish fewer people had to experience it.

That’s why I’m fundraising for PSPA, the UK charity supporting people with PSP and funding vital research into treatment and, one day, a cure.

This marathon is a milestone in another journey, too—my own. A few years ago, I was inactive and unfit. I started with a Peloton bike in lockdown. Then spin classes became weights. Then running. Then two half marathons. Then six Hyrox races. Now, the London Marathon—my biggest challenge yet.

My dad’s journey is one of physical decline. Mine, I hope, is one of progress. His path is involuntary and devastating. Mine is chosen, and hard, but hopeful. I run because I can, and because he no longer can.

Please sponsor me if you can. Your donation will help PSPA support patients and families of patients, and fund research so that fewer people have to face this future.

PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. They aim to improve the lives of everyone affected by PSP and CBD and rely entirely on voluntary donations. To learn more about what PSPA do please visit: www.pspassociation.org.uk