Story
I'm delighted to have recently joined the board of Cystic Fibrosis Trust, a charity which has been ever-present in my life following an early CF medical diagnosis for my sister Jo and brothers Stuart and John.
When my older siblings were born, life expectancy from those living with CF was considerably lower than its current level of 33 years, and I have seen the amazing transformation in my brother’s lives as a result of their use of some 'miracle' drugs, brought to the market in recent years. Sadly, the development of these life-enhancing drugs came too late for my sister, who passed away in late 2018 after living a full and courageous life.
To mark the 60th anniversary year of Cystic Fibrosis Trust, we’re organising a cricket tournament and an evening of entertainment at the home of Gloucestershire Cricket – the Seat Unique Stadium in Bristol - on Thursday 16 May 2024. This event is kindly sponsored by Burges Salmon.
If you'd like to join us on the day, please click here: https://www.cysticfibrosis.org.uk/celebratory-cricket-match
For those unable to make the day or evening, we've set up this page for additional fundraising. Thanks so much for your support, we really appreciate your generosity.
Cystic fibrosis (CF) is a genetic condition which causes sticky mucus to build up in the lungs and digestive system. It affects more than 10,800 people in the UK. One in 25 of us carries the faulty gene that causes it, usually without knowing.
Cystic fibrosis comes with challenges, affecting our physical health, mental wellbeing and how we choose to live our lives. But our community is uniting towards the ultimate goal of effective treatment for all.
Cystic Fibrosis Trust is the charity uniting people to stop cystic fibrosis.
